Thursday, October 9, 2008

Stillbirth Awareness and Research Act [Support]

I knew a long time ago who i supported in these troubling political times. But i when this bill was announced my vote was further solidified.  we wear our Obama pins proudly and prominently.  

Our daughter Olive Lucy died  during labor and was subsequently stillborn for a reason none can explain, or prove without some kind of  inference rather than actual evidence or more research.  her cause of death UNKNOWN. although as far as the government is concerned she wasn't Born at all. Aside from the NYC Health Depts. Spontaneous Certificate of Termination there is NO record of my daughter demise or existence this bill will help to establish a national registry and hopefully bring about Standardized Postpartum reporting of all perinatal loss --fetal demise, Late term miscarriage, Stillbirth, SUDS and SIDS alike.  Standardized reporting is essential to the research needed to end unexplained fetal death.
It is estimated that even with all the advances in maternal fetal medicine that between 12- 50% of fetal death are without causation. ( Incerpi M, Miller D, Samadi R, et al.: Stillbirth evalutaion: What tests are needed? American Journal of Ogstetrics and Gynecology 1998; 178:1121-5.) OUR  babies are dying, have died and will continue to die  from unknown causes until this bill is passed and the resaerch is mandated by the federal government.  

I know this isn't a war about oil on foreign soil or an economic crisis on Wall street but this is a War to save other families the fate that Watson & i have suffered, that each and every mother or father that has lost a child during pregnancy to some Unknown  cause is given an answer to the "WHY does this happen" question and then hopefully it can be prevented in the future. 

I beg you to support this bill. ~Christine


the following section was Originally Posted on 6/24/08 as Federal legislation: H.R. 5979 & Preventing Stillbirth and Sudden Unexpected Infant Death Act of 2008 before the blog moved... now retitled and moved here!

Hooray for Senators Obama & King for shining some much needed light on the need for Stillbirth and Sudden infant death research as well as a national registry. I urge you all to ask you federal representaives to support these Acts.

Obama Introduces Preventing Stillbirth and SUID Act of 2008



H.R. 5979, The Stillbirth Awareness and Research Act of 2008



From the folks at First Candle!

First Candle is pleased to announce its full support of the Preventing Stillbirth and Sudden Unexpected Infant Death Act of 2008 which was introduced on Tuesday, June 17th by U.S. Senator Barack Obama of Illinois. The bill would establish a national stillbirth and SUID registry and promote prevention and risk reduction activities nationwide.

Each year, more than 25,000 women in the United States experience a stillbirth and approximately 4,500 infants die suddenly and unexpectedly. First Candle, a leading health organization dedicated to safe pregnancies and the survival of babies through the first year of life, has served as a lead advisor to Senator Obama in crafting the bill.

First Candle urges you to write to your Senators and encourage them to join Senator Obama by adding their name as cosponsor of this important legislation.

Additionally, we also invite you to support H.R. 5979, the Stillbirth Awareness and Research Act of 2008, introduced by Congressman Peter King of New York.

To learn more today about these groundbreaking bills visit www.firstcandle.org. Thank you for your support in the belief that every baby should live.

2 comments:

cheeky chums said...

We are so sorry for your loss, we have recently launced a new website for families who have lost a baby its a baby bereavement site and offers support for ealy baby losses, premature baby loss and still born babies it can be found at www.prematurebab.com. also if you know of anyone struggling to find baby burial clothes these too can be found for the mnost premature of babies at www.cheekychumsonline.co.uk

Grammy Staffy said...

I am not for Obama but in this case I will surely support this bill.

How are you? How is the new baby? I am so anxious to see pictures of him. I send best wishes your way.